Transplant Day 31
My new kidney continues to work flawlessly. I haven’t been as good as before with fluid intake, but WILL be back on track today.
My weight is unchanged, BP and temp are stable, but my input and output are less.
I did have 3 episodes of diarrhea yesterday (thank you, CellCept), I continue with intermittent hand tremors, and hardly slept last night (Prograf?). But those are minor annoyances that I can live with.
I have routine lab work tomorrow (“the big 3”-blood count, basic metabolic panel, and Prograf level).
On Friday, I have a Urology appointment to remove the stent between my bladder and new kidney. Prior to that, I have a nurse appointment in Nephrology to get an IV infusion of Venofer (Iron).
Going away for the weekend did all of us a lot of good, but it’s time to get back into my routine. I thought that I would have a hard time being away from work, but I’m actually keeping quite busy. I plan on resuming my weekend job when I return to my full time job, except I’ll probably only work Sundays for August, and in September, go back to Saturday and Sunday.
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CHRONIC POSITIVITY - Life with Polycystic Kidney Disease 
“But those are minor annoyances that I can live with.”
How do you do it?? I’m amazed at your great attitude. It brings a smile to the lips of a bah-humbug curmudgeon like me.
“I haven’t been as good as before with fluid intake, but WILL be back on track today.”
Not drinking enough was one surprising thing I’d never thought I’d have a problem with, either. When I was on dialysis I was ALWAYS thirsty, now I have to remind myself to drink, even when I AM thirsty!!!
Did you get my email about MyKidney!?
Kandylini,
It’s all perspective; diarrhea 1-2 times a day and hand tremors is MUCH better than sitting at dialysis 12 hours a week, not to mention that how much better I feel.
Krissi,
I got it, and replied back.
Thanks for giving me daily inspiration. Reading your blog helps me have a better attitude about life’s petty annoyances.
It’s all about perspective. And my perspective is that I’m a lot better off than many other people….
I was browsing WordPress blogs last evening, and came upon a post titled “Not Fair” (about how this person had a high cholesterol reading on recent blood work).
Quote: “I am really, really irritated about this. And maybe a little angry. I mean it’s not like I sit around eating Fritos all day…but I would like to enjoy them occasionally. It’s not fair. You can’t choose your genes but I thought I was on track to defeat them. I thought I had about 10 years and maybe a couple of kids to go before I had to cave into things like low-fat salad dressing and checking my weight. I feel like I’ve been robbed, looking forlornly at cakes and pies that need a good home, robbed of 10 years when all that was required was casual attention and maintenance.”
I think that this person needs perspective; she’s alive, able to sit up and take nourishment, and doesn’t have a terminal illness. Compared to my former co-worker’s daughter who was just diagnosed with Stage 3 lung cancer at the age of 28, I think a little high cholesterol is nothing to complain about.
My theory is that pretty much all of us will have some health issue to deal with at some point in our lives. As long as it’s not terminal or debilitating, then life is good….