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Posts Tagged ‘neuropathy’

Another close call, monthly labs

March 20, 2009 Leave a comment

My sister was in the Emergency Department again today, but this visit was not an emergency. She got a call for a kidney, and was told to go to the ED.

As it turns out, the kidney was a no-go. The potential donor was a 50 year old with a head injury, but the surgeons apparently would not take the kidney, as it wasn’t suitable. 

I know that my sister is disappointed, but a transplant is not something to rush in to (I know, easy for me to say, but it’s true). It’s worth waiting for an optimal kidney, not only to prevent problems, but also, if you are transplanted once and it fails, it’s harder to match subsequent kidneys for transplant due to antibodies from the first transplant. Better to get a good one initially so that it will hopefully last longer.

She has been on the list for almost 3 years now, and has had several calls, but on a positive note, the calls are getting closer, and she was “1st in line” for this kidney. So it should be soon…

As for me, I had my monthly labs this week, and my creatinine is 1.1, which is the lowest ever since transplant.  My glucose was high, but it was non-fasting, so I’m not too worried about that yet.  My blood counts are good, although my lymphocytes are high-probably because of the bronchitis I’ve had this week (increased lymphs indicates a viral infection).

The only other issue is that I have what appears to be a blister on the top of my 2nd toe.  I had my doctor eyeball it, and he just told me to soak it in Epsom salts. I have to be careful due to my neuropathy; I have minimal sensation in my feet, along with decreased sensation to pain.  I held off on walking the past 2 days, and it is improving.

Have a great weekend. The weather here will be picture-perfect sunny and mid 50’s.

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Transplant Day 36, 2000+ Hits!

June 8, 2008 3 comments

No more pain from the cystoscopy/stent removal. In regards to med side effects, I’m sleeping OK, the diarrhea is controlled (I increased my fiber, and that seems to help), but the hand tremors (from Prograf) are still somewhat bothersome, especially after my am dose (I take 3mg in the am, and 2mg in the pm). But again, I’ll take the minor annoyances over kidney failure any day. My weight seems to be hanging around 207 lbs, when just last week it was around 209, so that’s an improvement.

Oh, I forgot about another side effect: bruising from aspirin (a.k.a. ASA). Friday, I was walking in our hallway in bare feet, and stubbed my toe on a throw rug (not at all uncommon with CMT). By yesterday, I had a nice bruise (as well as pain and swelling). I posted a pic at the end of this post; you can also see the characteristic “hammer toes” as a result of the neuropathy.

 My blog hit 2000+ hits sometime Saturday afternoon. Not bad for being up less than 2 months (not sure how many my LiveJournal blog has, because  LJ doesn’t offer the blog stats option).

I found an interesting blog entry from Fabius Maximus on the economy: When Did Dude Predict A Recession?

This is a clickable thumbnail; the larger pic isn’t focused very well, because of my hand tremors, but this gives a pretty good indication of the bruise.  

New Address (and other stuff)

April 21, 2008 2 comments

I bought a domain from GoDaddy, and it is now “up and running”. When you type in www.chronicpositivity.com, it will redirect you to my WordPress blog.

For some reason, I’ve been getting “orthostatic” since Saturday (very lightheaded if I stand up too quickly). Maybe it’s just a fluke…

Last night was a T3 night. I fell asleep OK, but about 30 minutes later, I woke up and both hands were burning, and I had restless arms (similar to restless legs, except with the arms). It is such a weird feeling, and I tried to let it pass, but after 1/2 hour, it didn’t, so I took 2 Tylenol #3’s, and that did the trick. It’s been about 2 weeks since I took any T3’s, so overall, I’m not overdoing it.

My friend has scheduled an appointment with the surgeon for an initial consultation for gastric bypass. Like I told him, he’ll get to the point where living with being overweight will be worse than the perceived risk of the surgery. And, his medical problems will at the very least become much more manageable, if not resolved. Like I tell everyone: healthwise, it was the best thing I ever did.

Yesterday, I watched one of the best movies I’ve ever seen: Million Dollar Baby. Last night, Jackie, Kevin, and I watched Crash. When we first started it, we almost turned it off. But we stuck it out, and by the end, the consensus was that it WAS a good movie (3.5 stars out of 5).

Tomorrow is election day in PA, and while I enjoy following the antics of each campaign, I’m sick of all of the ads (especially the negative ads), so I’ll be glad when it’s Wednesday. Surprisingly, there are an ABUNDANCE of Ron Paul signs all over the area, and I’ve heard his radio ad several times.

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