Archive for the ‘Random’ Category

And Yet Another Surgery

September 26, 2012 2 comments

I’m headed for another medical first for me: 2 surgeries in 1 year.  The first surgery I had this year was when I had my dialysis fistula tied off in April (along with the associated debacle in the hospital several days later).

The previous April, I had surgery on my left foot due to an infection in my foot bone (osteomyelitis) as well as a deep tissue infected from a foot ulcer, and the associated debacle 3 weeks after THAT surgery that put me in to the hospital with Acute Renal Failure from an interaction with my Tacrolimus (I was prescribed Fluconazole for the Candida Parapsilosis in my foot, which caused my Tacrolimus levels to go to 33, leading to ARF).

I just now got back from the Podiatrist, and had the persistent ulcer on my right foot debrided, and given Cipro for the beginning of a cellulitis.  It never really healed well from the cellulitis I had last month, and started “acting up” again over the past week.  He told me I probably have a multiple organism infection, which if not treated, would most certainly become much more problematic, especially given my immunosuppression.

This is all a direct result of my Charcot Marie Tooth peripheral neuropathy.  The muscles in my leg have deteriorated over my 49 years, and although I use a fitted lower leg orthotic, there is a lot of pressure on the outside of my foot, which caused an ulcer.  It will never probably heal well, so my Podiatrist suggested I talk to my Orthopaedic surgeon about reconstructive surgery on my right foot.  I had it done on my left foot last year, and I’ve had no problems at all on the left since my surgery.

I knew this was coming, and although I’m hesistant to do it, I know I need it, and will have it done.

But, there will be 2 conditions I set before having it done (doctors HATE to hear that).

First and foremost, I will insist on a PCA pump, aka Patient Controlled Analgesia.  When I had my left foot done, the Anesthesiologist wouldn’t do a nerve block (rightfully so, being that I have neuropathy).  Thus, I ended up getting “bolus” doses of Morphine and Dilaudid, with much nausea/vomiting and poor pain control.  They did this because they planned on only an overnight stay, but it ended up that I was in for 2 days.  I had PCA for my kidney transplant and gastric bypass, and had excellent control of my pain with little to no nausea.

Second, I will have the Transplant Surgeons consulted while in the hospital to avoid any errors that put my kidney at risk.  They are the ones who manage my Tacrolimus, so they will be the ones to ensure that my kidney is safe.  After my hospitalization this past April when they gave me too high a dose of Vancomycin, I want somebody watching over the meds I get.

So for now, I’m hoping the Cipro helps, and will hopefully get an appointment to see Dr. Cush within the next several weeks.

As for my readers, feel free to contact me via the comments section.  There are people from around the world who read this blog, and I’ve had questions in the past, particularly about BK Virus treatment.  Thanks for reading and following.  I hope someone finds my posts helpful.


Random Stuff 9/4/08

September 4, 2008 1 comment

     On Monday, we went to Jackie’s sister’s house for Labor Day. Gorgeous weather, and a nice relaxing day. On the way home, we got a flat tire. It turns out that it was shredded on the inside (I had to drive over 1/2 mile before I was able to pull over), but they couldn’t find anything that punctured it. So, almost $300 later, we have 2 new front tires and the front end aligned. Yes, the tires were expensive, but since we drive so much, I get the top of the line “Touring” tires that have an 80,000 mile warranty,


There’s a letter to the editor of “Quest”, a magazine published by the Muscular Dystrophy Association in it’s Sept-Oct issue that fits right in with my philosophy and this blog’s title:

I’m 53 years old, soon to be 54.  At the age of 3, I was diagnosed with limb-girdle muscular dystrophy, and in 2002 I learned I had osteoporosis and massive degeneration of my hips.  In spite of it all, I’m still on my feet-walking and swimming twice a week as part of my therapy.  I’ve recently begun taking Boniva for osteoporosis and I still use magnets at night and drink green tea to keep healthy.

But I have to say that most of it is your state of mind.  A person’s state of mind rules their body.  To stay healthy, you’ve got to keep motivated. When we give in to negative thinking, that’s what makes us go downhill.

D.A. Herman
Alliance, Neb.

(Ms. Herman was featured in a portion of this article )

Kevin’s pediatrician, (and the head of the department I work in) has an interesting story. Dr. M. was doing his residency in Wilmington, Delaware in 1972, and one of his patients was a child involved in a car accident. The boy’s father had a new job, but wasn’t able to make it for the first day of work. Dr. M was in the boy’s hospital room when his father was sworn in to his new job. The father was Joe Biden, and he was sworn in to his first Senate term in his son’s hospital room with Dr. M. present. I told him that Biden better give him an invite to the inauguration if they win! 


My favorite part of Sarah’s speech at the convention:

I guess a small-town mayor is sort of like a “community organizer,” except that you have actual responsibilities. I might add that in small towns, we don’t

quite know what to make of a candidate who lavishes praise on working people when they are listening, and then talks about how bitterly they cling to their

religion and guns when those people aren’t listening.

We tend to prefer candidates who don’t talk about us one way in Scranton and another way in San Francisco.

Of course, I grew up about 20 minutes away from Scranton, and I’m writing this post clutching my Smith and Wesson .357, with my Norinco SKS at my side…  🙂


Prior to the speech, I wasn’t sold on either candidate, but was leaning toward McCain (800 million in NEW government spending by Obama leaves me no other choice). Now, I’m cautiously optimistic with Palin on the ticket. The main draw for me is that she goes against the status quo, fought excessive spending, recognizes that we must drill domestically WHILE developing new sources of energy, and she sold her state’s jet on eBay!


I wonder why US Weekly magazine had such a contrast in covers: Barack and Michelle Obama with the headline “Why Barack Loves Her” vs. the most recent with Sarah Palin and Trig (her baby with Down’s Syndrome) and the headline “Babies, Lies, and Scandal”. 

Well, Megyn Kelly did a great job in interviewing the Senior Editor of the magazine and asking some tough questions (the interview didn’t go well for the editor).

Random Stuff

August 10, 2008 Leave a comment

The weekend is almost over; it sure went quick.

We spent yesterday afternoon at Jackie’s sister’s house, having a belated birthday party for my father-in-law. They were on vacation in Florida for his birthday, so that’s why we had it this weekend. We also celebrated her Rottweiler’s birthday, which was yesterday. Since Patti is no longer married, and has no kids, her Rottie (the most gentle dog I’ve ever met) is her child. She had a special birthday cake that is made for dogs (peanut butter and banana, without all the sugar). Everyone except Ed (my father in law) and myself went swimming. It was only in the mid 70’s, so that wasn’t hot enough for me to go in the water.

Jackie and I went to restaurant in my old home-town for supper. They have awesome cheesesteaks, so I had one. Of course, it wasn’t without incident (again). The girl got 2 lids out for the drinks, and of course, she put mine down on the counter (the same counter people lean on, put money on, etc). I asked for a clean one, explaining my situation, and the girl got pissy. So, I just took one without the lid. Had I been alone, I would have gotten my money back and walked out, but I saw her dispense the soda, and was sure that there wasn’t any problem.

I worked a 10 hour shift today, and had to get up at 5am. It’s easy work, but 10 hours is a long day. It was a 4 buggy Sunday today; 3 with enclosed cabs, and 1 open wagon.

My employer has been working for several years on building up to receive “Magnet” status with our nursing department. I’d first like to say that most, if not all credentialing agencies and processes are BS (can you say “JCAHO“?). It’s a big game; the place seeking the credentials has everyone on their “best behavior”, has everything done the way the credentialing agency wants it to be, and once they are gone, everything is back to normal. Healthcare isn’t the only area this is done; I’ve worked for numerous places in high school and college, and it’s done in every industry. Anyway, my employer was seeking this at our campus, and bent over backwards to see that it was successful. They even had scrub tops with our name embroidered on them, and gave them out to all of the nurses on campus. Well, they got orders from every department on campus except for ours. When someone said something, they scurried to get some for us, and we got the leftovers. Fortunately, they had my size, but for the women, they ended up with tops that several had to alter in order for them to not be too big. It’s nothing new, as we are consistently “forgotten”, yet the clinic upstairs is included in everything. I’ve been in the field long enough to not let it bother me, but I keep it stored for later use; there will be a time when our system’s director of nursing will talk to me, and I will let her know.

Categories: Random