Home > BK Virus, December 2010, Health > December 2010 BK update

December 2010 BK update

December 23, 2010 Leave a comment Go to comments

I had my labs this week, and although my blood work isn’t yet available to view on MyGeisinger, I received a message that my BK urine PCR is up to 77,500 copies of BK virus from last month’s 41,200 copies.  I’m not too worried about it, as it does sometimes fluctuate, and it’s much better than the >39 million copies when I was first diagnosed with BK. 

My feet are in much better shape than a year ago.  I have the pressure ulcer on my left foot under control, and have a new orthotic on that leg (the other one broke).  I plan on getting a new one for the right as well, as the new one offers better comfort and support.  It’s made of a different material, and is higher up on my lower leg.  It took a few weeks of adjustments and getting used to, but overall it is much better than the one I had. 

I received an email today with a link to a site that looks to be a dialysis activism site.  It contains a link to a database that allows dialysis patients to compare dialysis clinics on 15 key measures, ranging from mortality and hospitalization to transplant rates and infection control. I looked up the dialysis clinic that I went to, and it got very good “grades”. 

Next month I have my quarterly appointments with the Transplant Surgeon and Transplant Nephrologist.  Not much else to report, but when talking about my transplant, boring is good.  Merry Christmas and Happy Holidays!

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  1. Lisa Gann
    January 9, 2011 at 10:37 pm

    I would love to find out what area you live in and Urologist you see. My 16 year old son had a bone marrow transplant and has BK virus. He is still having issues with his. There is only one urologist in our city that will see him because of the severity of his problems and my son has no confidence in this doctor. I am currently searching for docs in a 200 mile radius that are familiar with the virus and problems it can cause.

    • January 10, 2011 at 6:45 am

      I live in Pennsylvania.

      My BK is managed by a Transplant Surgeon; I haven’t seen a Urologist. If you are in this general area, let me know, and I can email you with specifics.

      I have a group on Yahoo Groups regarding BK virus which just started up. Maybe someone there is in your area (if I’m not): http://health.groups.yahoo.com/group/bk_virus/

      You might also want to post to kidney_transplants on Yahoo Groups; the people there are very helpful, and some have had experience with BK. Good luck! Feel free to post here with any specific questions.

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